Seyed Mehdi Hoseini1 
, Hanieh Jormand *2 , Hamidreza Ghadimipour3 , Vahid Mohagheghi4 , Nafiseh Mohebinazar5 , Roya Jafari6 , Majid Barati7 , Irfan Ayubi8 , Masoumeh Eywazi9 , Atieh Makhlough10
, Hanieh Jormand *2 , Hamidreza Ghadimipour3 , Vahid Mohagheghi4 , Nafiseh Mohebinazar5 , Roya Jafari6 , Majid Barati7 , Irfan Ayubi8 , Masoumeh Eywazi9 , Atieh Makhlough10
1- Department of Internal Medicine, School of Medicine, Hamadan University of Medical Sciences, Hamadan, Iran., mehdihoseini74@gmail.com
2- Urology and Nephrology Research Center, Hamadan University of Medical Sciences, Hamadan, IR, Iran. (Corresponding author jormand69h@gmail.com)., Jormand69h@gmail.com ,jormand69h@gmail.com
3- Department of Pathology, Faculty of Medicine, Hamadan University of Medical Sciences. Hamadan, Iran, Ghadimipour76@gmail.com
4- Department of Internal Medicine, School of Medicine, Hamadan University of Medical Sciences, Hamadan, Iran, Dr.v.mohaghegi7677@gmail.com
5- Department of Nursing, Faculty of Nursing, Hamadan University of Medical Sciences, Hamadan, Iran, nafisemohebi3@gmail.com
6- Department of Internal Medicine, School of Medicine, Vali-e-Asr Hospital, Zanjan University of Medical Sciences, Zanjan, Iran., royajafari263@gmail.com
7- Social Determinants of Health Research Center, Hamadan University of Medical Sciences and Department of Public Health, Asadabad School of Medical sciences, Asadabad, Iran, Hamadan, IR, Iran., Barati@umsha.ac.ir
8- Vice-chancellor for research and technology, Hamadan University of Medical Sciences, Hamadan, Iran, aubi65@gmail.com
9- Clinical Research Development Center, Imam Khomeini and Mohammad Kermanshahi and Farabi Hospitals, Kermanshah University of Medical Sciences, Kermanshah, Iran., meivazi66@yah
10- Professor of nephrology in Mazandaran University of Medical Sciences. Sari, Iran. Diabetes research center., makhlough_a@yahoo.com
2- Urology and Nephrology Research Center, Hamadan University of Medical Sciences, Hamadan, IR, Iran. (Corresponding author jormand69h@gmail.com)., Jormand69h@gmail.com ,
3- Department of Pathology, Faculty of Medicine, Hamadan University of Medical Sciences. Hamadan, Iran, Ghadimipour76@gmail.com
4- Department of Internal Medicine, School of Medicine, Hamadan University of Medical Sciences, Hamadan, Iran, Dr.v.mohaghegi7677@gmail.com
5- Department of Nursing, Faculty of Nursing, Hamadan University of Medical Sciences, Hamadan, Iran, nafisemohebi3@gmail.com
6- Department of Internal Medicine, School of Medicine, Vali-e-Asr Hospital, Zanjan University of Medical Sciences, Zanjan, Iran., royajafari263@gmail.com
7- Social Determinants of Health Research Center, Hamadan University of Medical Sciences and Department of Public Health, Asadabad School of Medical sciences, Asadabad, Iran, Hamadan, IR, Iran., Barati@umsha.ac.ir
8- Vice-chancellor for research and technology, Hamadan University of Medical Sciences, Hamadan, Iran, aubi65@gmail.com
9- Clinical Research Development Center, Imam Khomeini and Mohammad Kermanshahi and Farabi Hospitals, Kermanshah University of Medical Sciences, Kermanshah, Iran., meivazi66@yah
10- Professor of nephrology in Mazandaran University of Medical Sciences. Sari, Iran. Diabetes research center., makhlough_a@yahoo.com
Abstract: (10 Views)
Introduction: Glomerulonephritis (GN) is an important cause of chronic kidney disease and end-stage renal disease worldwide. The establishment of comprehensive national registries in several countries has been valuable for improving patient care and advancing research. The aim of this protocol is to design and implement a national registry for glomerulonephritis in Iran.
Methods: This study will collect data from patients diagnosed with glomerulonephritis by renal biopsy over a 12-year period (2013-2025) at multiple centers in Iran. The registry will include clinical, laboratory, and pathological data from patients. Data collection will use standardized forms and a customized software platform. Patient follow-up will be conducted 12 months after biopsy.
Discussion: The priorities of this registry include determining the epidemiology of GN in Iran, evaluating the course of the disease and treatment outcomes, and facilitating multicenter research. The resulting data will support clinical decision-making, trial design, and health policy-making. Conclusion: The establishment of a national glomerulonephritis registry can provide a fundamental infrastructure for generating evidence specific to the Iranian population and help improve patient care and expand research in this area.
Methods: This study will collect data from patients diagnosed with glomerulonephritis by renal biopsy over a 12-year period (2013-2025) at multiple centers in Iran. The registry will include clinical, laboratory, and pathological data from patients. Data collection will use standardized forms and a customized software platform. Patient follow-up will be conducted 12 months after biopsy.
Discussion: The priorities of this registry include determining the epidemiology of GN in Iran, evaluating the course of the disease and treatment outcomes, and facilitating multicenter research. The resulting data will support clinical decision-making, trial design, and health policy-making. Conclusion: The establishment of a national glomerulonephritis registry can provide a fundamental infrastructure for generating evidence specific to the Iranian population and help improve patient care and expand research in this area.
Keywords: Study protocol, End-stage renal disease, Kidney biopsy, Glomerulonephritis, National registry, Iran
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